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Best Update I can give at the moment..

1/9/2019

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​Sorry this is so late, it was a very long draining day and we rolled into our driveway at 7pm from the Hospital. We met with the Doctors today to discus Ellie and what the next steps will be.  Two things where dead give away that it was serious.  First the Neuro Oncologist, Neuro Surgeon, two nurse practitioners, and Art Therapist joined us to discus Ellie’s MRI. It was a very crowded room. Second Doctor Goldman had a very serious face on.  Ellie’s tumor has unfortunately has grown by 40% in the past 6 months.  We where given some options. We spent several hours asking questions weighing the pros and cons of each option. We shed some tears and spoke again about options. Then Doctor Goldman told us to go home and discuss it some more, watch a cartoon decompress and discuss it some more before making a decision.  There are many moving parts before we can even finalize a decision.  Ellie has to have a MRI of her spine and we need to make sure her tumor did not spread.  They do not believe that it did but before we can move forward we need to ensure it has not.  So as much as I am an open book I am keeping our options to ourselves at the moment.  I ask that you respect this and just pray for us to make the right decision.  I do not want to hear about any all natural medicines or anything else at this time.  We just need time to process and time to come to a decision that works best for our family.  Ellie now being 14 is a huge part of this discussion also.  We are taking her thoughts into consideration as we make what could be a life changing decision for her.   I cannot thank you enough for the texts, messages, and calls, I’m sorry if I have not been responding because we just need some family time right now to figure things out.  As soon as we figure out Ellie’s Next Chapter we will inform everyone. 
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    Ellie is my sweet heart. Her wig has given her such confidence..
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  • HOME
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