First Post!

Yesterday was a rough day, so today I decided to review all my past posts to see how far we have come in just a short time.  By reading all the posts I felt amazingly blessed for my daughter and for all my family, friends, and supporters.  I think back to the very first couple of days in the hospital. I think how I was devastated and how I cried every chance I got.  So many times I had to walk out of the room or turn my head.  And when I say cry, it was uncontrollable out loud crying. I would have never made it through that without my husband who was a rock. He would just hug me and rub my back. He kept on telling me we will get through this.  He was absolutely amazing.  He never not once let me see him cry (Not saying it didn’t happen). Although he would tell you it was sweat :o).   Dave has been the most amazing husband and father through everything our family has endured over the past couple of years. When I was diagnosed with MS in 2006 and they told me I was wheel chair bound he did not question our relationship, like most husbands would. We just did what was needed to get through it all. Thank god at this point I am not wheel chair bound, although I do have my days. I would take a day, a week over every day of my life.  God has blessed us in so many ways.  The best blessing I have ever received was my husband.  Shortly after my husband came the most amazing, sweetest, loving little girl Ellie, and then we were blessed with our rambunctious Jake who was diagnosed with S.I at the age of two.  Although the road with him has been a challenge, I wouldn’t trade a single moment with him. He makes me smile, laugh, and feel joy every day.  He is one handsome little man with an amazing personality.  As most of you know we have been battling Jakes severe allergic reactions for the past year.  The hospital has been a very familiar place for our family in the past 5 years.  I just wish they had a frequent punch card or would name a wing of the hospital after us. 

 

Due to all the problems that our family has endured we sold our house in Lockport and moved in with my sister in Lemont.  We spent over two years living with my sister and her husband.  Just recently, July 2009 we were able to buy a house that was less than a mile from my sister’s house and a mile from my mom’s house.  (Although there are many problems with the house, we love it for the location) I would never be able to survive without the support of my sister, brother in-law, Mom, and step dad.  If I have a bad MS day they are at my house right away taking care of me and my kids.  I have four the most amazing Grandparents in the world. They are always there to help with whatever I need.  When I wasn’t able to drive for 6 months my grandparents drove from Chicago to Lemont, and then drove me to Palos for my therapy treatments, and back to Lemont. Talk about amazing people.  My other set of grandparents is constantly babysitting, helping at the house, basically doing anything that is needed.  Anyone that meets my family falls in love with them.  It’s hard not to.

Boy, am I rambling today.  Ok back to the little girl that has begun this blog of our journey.

Ellie-

She is doing amazing today.  She is laughing, smiling, coloring, and playing.  I love the sound of laughter.   We are just playing the waiting game until Feb 7th when Ellie has her doctor appointment that will give us the next steps in this journey. For now we just stick to medication and therapy every day.  I feel so blessed that my little girl is alive.