my Ellie is back... well at least for today..

  When I woke up this morning I never imagined this being such a fantastic day.  On Chemo days I am always tired and sad.  But today was totally different.  You could not wipe my smile off my face all day.  It felt like my Ellie was back.  And she was back ALL DAY LONG.  Not once today did Ellie have a mood swing.  I could not believe it; I just kept on thinking it’s got to be coming soon.  It never came she was my Ellie all day long.  She was so incredibly sweet, kind, and lovable.  She finally showed everyone at the hospital what a special child she is. 

Ellie and Doctor Goldman really connected today.  He had her stand on her IV pole while he pushed her back to day hospital today. She had a blast getting a little ride; there were smiles and laughs all the way. As he was wheeling her he said “let this be a lesson for you Ellie, never let a man push you around.”  He is so comical and enjoyable to be around.  Ellie also made him a flower out of piping and tied it around his finger.  He wore it all day long.  He stopped by Ellie’s room a couple of times with this huge flower hanging off his finger; he would say “do you think it’s too much?” Absolutely love him. We are so happy we requested him and thankful for the Ganz family for recommending him. 

She saw the art therapy specialist and got to draw a picture.  She drew a really good picture of Dave.  So Willow the therapist called me over to take a look.  I first saw the picture as a whole and said “wow what a great picture.”  Then I noticed the face on Dave, this made me very sad after Willow explained that Ellie said that her Daddy is sad and mad lately.  (I attached the picture of Dave to this blog) The bubble in the pink showed a smile because she wishes he was happy again.  It made me realize she does notice our sadness and made me think about how we act around her.  I made sure Dave saw the picture when we got home.  He was so surprised, and disappointed in himself for letting Ellie see his sadness.  Hopefully we can work on this as a family.  I know Dave is under so much stress working and dealing with Ellie’s sickness he is so overtired and stressed.

Today was a much longer day due to her extra two hour dosage of medication.  The medication has to be administered via IV because she is allergic to the oral version that we were giving her.  She kept on getting facial rashes.  Ellie’s oncology nurse informed us that Ellie’s blood levels have not stopped dropping, which explains why she is so tired lately.  They have her scheduled for a blood transfusion next week.  This will be an additional three hour process added to our already 6 to 7 hours downtown.  It should be an even longer day next week.  Hopefully after she gets the transfusion she will have more energy.  They cannot predict if this will be a regular thing yet.  We will know more in a few more weeks of getting Chemo if it keeps her counts going low. 

None of this even phased me today, I was just so happy that Ellie was happy.  I would not trade today for anything.  I am hopeful we can have another one of these days tomorrow.  I am not banking on it though.  Ellie did go to bed tonight with a horrible stomach ache and she was exhausted.  It was hard to get her to eat anything today. Still didn’t get her down though she was a very pleasant sweet good mannered child.  The best little girl in the world, the one I remember.  Love and hugs for my sweet precious Ellie.