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Resting Comfortably..

1/22/2019

Comments

 
​What an incredibly long day.  Feels like its midnight at 6:30pm.  Ellie is in a room and visitors are extremely limited as hospital policy’s have changed.  It’s sad but it is for the protection of the kids.  Also we got to our room and found out flower are not aloud on this floor.  We already received flowers and Dave is going to take them home I have not seen them yet but thank you to whoever sent them.  Any other deliveries can be brought onto the floor.  This is a learning curve with all these new policies. So appreciative for Dad for making me laugh all day while waiting for Ellie to get out of surgery.  The on going joke is that I don’t answer my phone, so I told him to text me.  So we sat next to each other in waiting room while I texted him he was calling and leaving messages.  We have so much fun together.  Look at Jake’s smile with his childhood Babysitter family friend, Kasey, who took time out of her schedule to take him Bowling tonight while we where in the hospital.  Jake’s smile is the best gift I have gotten yet. Ellie is having extreme nausea and has not been able to keep even a sip of water down.  She is resting comfortably.  Its too soon to tell the side affects of the surgery yet, right now we are noticing weakness on her left side, and weakness on her right side of her face.  She is one strong cookie and actually formed a sentence to us tonight before going right back to sleep.  Dr. Goldman her Neuro Oncologist stayed late to visit her in the hospital.  He came in with her neuro surgeon and a bunch of residents to check in on Ellie.  He did his normal cracking of jokes.  His on going joke is that Ellie and him are going onto Americas got talent as a duet.  He had us all laughing, Ellie not so much right now.  We also had visits from nurses that have known Ellie since she was six and we reminisced about the old hospital and the last brain surgeries Ellie had.  I am feeling extremely blessed right now for an amazing support team that is standing behind us.  I can’t believe the love and support we have gotten, Thank You! 
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  • HOME
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