Still a roller coaster but I see an end in sight..

​Thursday after work Dave came by to visit with Ellie for a bit.  She is a total Daddy’s girls.  At one point Ellie fell asleep and Dave went to get dinner for us.  She woke up while he was gone and was concerned that he left without saying good bye.  She said “Make sure you wake me to say goodbye to Dad before he heads home please.”  I was so happy and my heart was full having him here even for just one night.  He has been pulled in so many directions juggling work, Jake and the hospital.  Ellie was really lethargic and just in so much pain yesterday.  She kept on vomiting and could not keep anything down.  They put her back onto the IV for fluids. They reprogramed her shunt hoping this would do the trick.  
 
Fast forward to this morning…. 
So today went pretty smoothly.  I was woken up by a message by the person who plays George Washington in the Hamilton play with a very nice message and a video of the entire cast.  I was so excited and couldn’t wait to show Ellie but she did allot of sleeping this morning.  My mom showed Ellie while I was gone and Ellie was excited but I think she will be even more excited once she sees Hamilton. I left for home early this afternoon while my mom sat with Ellie so I could get a shower and more clothes. Ellie facetimed with her dogs while I was home.  The dogs where so excited but confused as they kept hearing her voice and could not figure out where she was at.  It was very cute and it gave Ellie some joy.  She loves dogs so much and especially her dogs.  
 
 When I got back my mom told me Ellie had been up walking not really eating much.  Once I got back I started pushing the fluids.  Luckily Ellie was hungry and was eating lots of crackers.  That is all she has eaten all day.  This evening I was able to get her to eat two breadsticks. She has kept everything down today and has not thrown up. She is still uncomfortable when laying down but she is night and day from yesterday. She even had enough energy to played cards with me and kicked my butt in Connect 4.  We did work her hard today so she was exhausted this evening and went to bed early.   We are trying to stay in front of the pain with meds.  Dr. Dipatri and the team came in around 6pm to let us know that we will be spending the night but they will be in at 7am and if all remains the same they will release us in the morning and Ellie would be able to go to the Parade. As of now we are not holding our breathe because Ellie has had good days and then woke up the next day super sick. Lots of prayers and fingers crossed that we get to go home tomorrow and Ellie is feeling good.  So for now the plan is to wake Ellie up at 6am try to get her out of bed and see how she feels.  It should be interesting waking her so early as she has not been up early since her before her January surgery.   Dave is going to head down to help out tomorrow morning.  Ellie has lost allot of weight and strength so we will need to work on her stamina and strength once home, but for now we are going to focus on the positive that there is a possibility we could go home tomorrow. 
 
Tomorrow the Parade and festivities start at 1pm in Downtown Lemont.Bracelets and 50/50 raffle at Hughie McClafferty’s Beer Tent in support of Ellie in Downtown Lemont Tomorrow from 11-2pm.  I hope everyone comes out for a good time in Lemont.  If you have yet to be to this Irish Pub you should try it. I was there once before Ellie had surgery and it was fantastic. 
 
Since I have an early morning I will be going to bed.  I hope to see a sea of #Elliestrong green in the crowds at the parade tomorrow.  Thank You

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Thursday Night Visit with Dad.. 

Today Ellie worked hard to get her walking in.  

Hamilton's Cast Message for Ellie.. ​​