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two steps forward, five steps backwards...

3/8/2012

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Yesterday was a pretty good day downtown.  The doctor informed us that Ellie would be able to do most of her chemo at home.  They are going to send an in home nurse to the house to administer Chemo.  This would mean Ellie would not have to miss so much school.  We all left the hospital feeling excited about the next few weeks at home.  We began her pill chemo treatments last night and continued every six hours. 

Ellie did an awesome job taking her pills through the night and this morning.  She even went to school this morning.  I then received a phone call from her doctor to inform me Chemo had to stop immediately because her counts are low.  So tired of taking two steps forward only to take five steps back.  I’m so proud of how Ellie has been handling herself and all the changes.  If someone asked me a year ago if Ellie was going to be able to handle everything, I probably would say defiantly no.  But she has proven me wrong.  What a strong and amazing little girl. 

So, here we are moving forward the best way we know how.  Now we wait a week, have an in home nurse come draw her labs, hope and pray her counts are high enough to get Chemo.  

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    Ellie is my sweet heart. Her wig has given her such confidence..
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